The late discovery experience...

Many adolescents and adults find out that the truth of their genetic origins was intentionally concealed from them. This intentional secrecy can have significant effects before disclosure and the 'late discovery' experience itself can have significant implications for personal identity, relationships with others and values. Existing research identifies feelings of betrayal, loss of trust and difficulty forgiving as significant features of this experience. It also notes the negative effects secrets of this kind have on family dynamics and identity construction.

I have felt for some time that a specific 'late discovery' site was needed to provide (a) information about existing research on 'late discovery' with links to other sites offering information and support, and (b) to begin to try to gather some broad statistical information about 'late discovery' experiences.

This is a personal initiative to start building an information database that can be used to develop a picture of 'late discovery' experiences internationally. I hope that the information gathered can be used as a tool to seek funding for a more permanent website and the establishment, perhaps, of an international late discovery of genetic origins network in the future if there is sufficient support for the concept.

WHAT CAN YOU DO?

Provide information to any or all of the questions below.

No identifying information is required! All responses will be collated periodically and the data added to this site.

Go to late discovery questionnaire...

Mothering Conference Presentation


Click to watch Slidecast in large screen format

Slide 1: Fourth Australian International Conference on Motherhood The Mother: Images, Issues and Practices Helen J. Riley PhD Candidate Queensland University of Technology, School of Humanities & Human Services, Applied Ethics Intrinsic trust and mothering: the ethical implications of the late discovery of knowledge of genetic origins A tree with branches but no roots stands on shaky ground

Slide 2: “Deceit and violence – these are the two forms of deliberate assault on human beings”. Bok, S. (1989). Lying: moral choice in public and private life. New York: Vintage Books.

Slide 3: • Late discovery adoption – Well over 200,000 adoptions in Australia • legislation changes to open records 1984-1994 (Marshall & McDonald, 2001) – My estimate – circa 10,000 - 20,000 late discovery adopted persons in Australia • many still finding out in their 40’s, 50’s and 60’s!

Slide 4: Brenda, a mother, now 67 - 55 at time of late discovery “I felt absolute disbelief, let down, lied to, and that I had been mistrusted by not being told the truth and had spent my life living a lie”. All these emotions and reactions seem[ed] to join together. Tina, mother, now 49 - 33 at time of late discovery “I…became severely anxious going on to develop manic depression. My marriage split up and my 2 children were traumatized”. Sally, mother, 49 at time of late discovery “I felt very alone and felt like I was drowning”

Slide 5: Felicity, a mother - 35 at time of late discovery “….absolutely devastated ….it’s hard to explain because even though I always had a feeling….I was sad, confused, angry, relieved, emotional, bitter, afraid, and an immense feeling of loneliness and rejection and feeling not important and perhaps a feeling of insignificance” Louise, a mother, 40 at time of late discovery “[this] information [was] given to me by my husband as he left… after 12 years of marriage, during which time he carried the secret of my adoption”. “…. betrayal, abandonment and [the] distress of learning that everyone in my life had known of my adoption and chosen to keep it secret from me”.

Slide 6: Louise cont’d “…ingrained anxiety and over protectiveness of my sons…in the early years following revelation of my adoption, feelings of desolation and despair arose and remained with me”. Karla, 40 at time of late discovery “I felt profoundly betrayed….the brunt of a 40 year joke……I became obsessed with the unfairness of state-sanctioned laws that prevented me from access to my original birth certificate…..I was appalled that state laws deprived me of access……”

Slide 7: Felicity, mother – 35 at time of late discovery “still to this day I have not dealt with the situation and I think I never will fully because even as I type these words it is like I am referring to a third party it is surreal to think that it is me I am referring to……….” I get lot’s of bad days…….I feel angry at my parents for not preparing me and looking out for me…….my relationship with my mother is definitely strained”.

Slide 8: “…the main task of infancy is to acquire a favourable ratio of trust to mistrust” Miller (1993) ‘If you can’t trust your parents, who can you trust?’. common saying • Trust – Basal security • Jones, K. (2004). Trust and terror. In P. DesAutels & M. U. Walker (Eds.), Moral psychology: feminist ethics and social theory. Lanham: Rowman & Littlefield Publishers, Inc. – Intrinsic trust • Brison, S. J. (1997). Outliving oneself: trauma, memory, and personal identity. In D. T. Meyers (Ed.), Feminists rethink the self. Boulder, Colorado: Westview Press.

Slide 9: • “Trust is accepted vulnerability to another person’s power over something that one cares about, where (a) the truster forgoes searching (at the time) for ways to reduce such vulnerability, and (2) the truster maintains normative expectations of the one-trusted that they not use that power to harm what is entrusted”. • “dissonance between, on the one hand, intellectual judgments of risk and, on the other hand, emotional responses to risk and willingness to enter into… .trust relations despite risk? Jones, K. (2004 p.6-8)

Slide 10: – hyper-vigilance ……a heightened awareness of own vulnerability • higher than average estimates of objective risk provided in a situation – an automatic assumption of threat • can lead to revisions in practice of trust – a LD comes face to face with the inability of even the wisest of trust practices to protect from the harm that others can inflict

Slide 11: “A traumatic event is one in which a person feels utterly helpless in the face of a force that is perceived to be life- threatening” (p.13). When the trauma is of human origin and is intentionally inflicted…it not only shatters one’s fundamental assumptions about the world and one’s safety in it but also severs the sustaining connection between the self and the rest of humanity” (p.14). Causes “cognitive and emotional paralysis” (p17)…..”one’s memories of an earlier life [is] lost, along with the ability to envision a future……. one’s basic cognitive and emotional capacities are gone, or radically altered……this [leaves the survivor] with no bearings by which to navigate (p21)”. Brison, S. J., 1997

Slide 12: LD experience fulfils many of the criteria outlined by Brison and Jones for determining what defines ‘trauma’ that can shatter intrinsic trust – life threatening? • In LD – identity is threatened – intentionally inflicted? • Yes, but not usually with intention to harm

Slide 13: – An ‘ethics of identity’ in late discovery • Personal identity • Relationships with others • Moral values

Slide 14: • Personal-identity – Kinship losses • The intentional denial of knowledge of biological kin – Genetic medical history • ‘fake’ …….. then ‘unknown’ – Loss of cultural identity (religion, history, genealogy) • Perception of an imposed wrongful identity leading to demands for rights

Slide 15: • Relationships with others – mis-recognition • negligent disregard by others – disrespect or contempt by others – not treated as a person worthy of equal moral value – a loss of agency…..of not being in control of one’s own life • Can result in reactive attitudes with effects beyond the individual ……disharmony in relationships, loss of trust in others, generalised feelings of sadness, anger, bitterness, frustration

Slide 16: • Moral values – Lack of transparency can render individuals ‘mute’ or ‘invisible’ leading to feelings of negative or diminished recognition and response – (perception of unequal moral value) • Long term, the moral values of care, integrity, trust, responsibility, justice, rights, dignity and accountability may be affected M.U. Walker, 1998, 2000, 2006

Slide 17: Late discovery stories reveal implications for mothering when intrinsic trust [basal security] is violated, shattered or undermined. • Loss of sense of connection with others • Live in state of hyper-awareness or hyper-vigilance - anxiety and depression • Lose direction in life – no past/no future • May lose confidence in mothering – one mother lost/lied to by another • Often unable to heal for long periods • Disharmony in relationships and with institutions • Changes in moral values

Slide 18: Donor assisted conception • Australia ca 6,000 births/year • USA ca 60,000 births/year • Overall - 1/3 or less of all parents tell their child/ren of their means of conception. – prediction…many thousands of donor conceived offspring in the future will find out about their status as adults

Slide 19: Beth, 27, lesbian and considering motherhood using donor sperm at time of discovery “It’s weird to have a thing about you that should matter, but doesn’t, except it might, but you never know. How much of who I am comes from a man I’ve never met?”

Slide 20: Wendy, now 22 at time of discovery “shell-shocked…living dual lives…for as long as I can remember dad has loathed my sister and I [and now he admits this is] “because we are not ‘his’ ”.

Slide 21: Heather, 18 at time of late discovery “everything I’d lived and thought I fully understood through one identity, I began to second guess with half of my identity missing” “I felt illegitimate, ashamed, unrecognised and abandoned by my biological father”.

Slide 22: Christine, a mother and grandmother at time of late discovery “At that moment I was a middle aged wife, mother and grandmother, but I no longer knew who I really was”. “…..I was left with the mammoth task of reassessing my whole life….a deep sense of loss and grief….anger and frustration”. Identity Crisis My other self is musing On the person I should be, if only there had been a chance To find the proper me. But who am I? Where am I from? My life is all at sea, From being trapped inside a lie, A false identity.